Kind of
Tuesday, July 7, 2009
The Narrowing of Normal
Kind of
Saturday, January 26, 2008
Just Thinking about Inclusion and Ideology
"I've been thinking," I said, as we settled into our steamy-hot, pre-Shabbat bath yesterday afternoon.
Generally, my husband Bruce gets a worried look on his face when I say this, fearing that my "thinking" is going to lead to some new and money-intensive rennovation for the house.
But this time, my thinking has to do with the focus or theme of this new semester in my doctoral program. Each semester seems to provoke a particular line of thinking in my mind, and seems to develop its own theme, as I place what I am learning into perspective with what I already know.
For my Trends and Issues in Special Education, I had just read an article by Kauffman that dealt with the inclusion movement and the (pick one) demise, repair, conversion, or reincarnation of the field of special education. And it got me thinking.
And, as I consider what kind of perspective I will bring as a graduate student in my Child Psychopathology class, I started thinking about the individuality, identity and gifts of neurodiverse people that we usually define by pathology such as those with Autism Spectrum Disorders (ASD), Bipolar Disorder, Attention Disorders and others like this, that are essentially defined by differences in the structure and function of the brain. Thinking is added onto thinking!
The confluence of these two streams of thought seems to be coming down to some ideas I have about how in our thinking about education, we are narrowing what we consider to be normal and justifying that by wrapping ourselves in the mantle of "diversity." I was struck by the thought that what is happening in the field of Special Education with regard to inclusion seems to be particularly illustrative of what is happening in our society at large when it comes to dealing with differences. I am certainly not done with thinking about this, but I do have some ideas about what I think is happening. And I think that the concept of inclusion has moved from being one aspect of the continuum of services for special education to being an ideology of almost religious proportions in the minds of its most extreme advocates.
As originally outlined, inclusion meant that along the continuum of special education services, it was sensible to place the student with disabilities in the general education environment as much as possible. This meant that, for example, a student with severe and multiple disabilities, who might need full-day placement in a small classroom with a specialty teacher, should also have recess and lunch within the larger population of the school. But as the idea has evolved, inclusion has for some become about dismantling the continuum of services entirely, and advocating the full-time placement of all special education students in the general education classroom. To the inclusion ideologue, to provide any services in a separate setting is defined as segregation, and the argument is that separate is always inherently unequal. If those words--separate is unequal--sound familiar, they come for the landmark United States Supreme Court Case, Brown v. the Board of Education, which was the school desegregation decision.
It sounds very egalitarian. All children should, they say, have the same educational experience, in the general education classroom, and all necessary services to children with disabilities should be delivered in the general education classroom. This idea is justified by the argument that disabilities aren't really disabilities, and that all of us are fundamentally the same, really, and have the same needs. But when this concept of inclusion is married with the standards movement, which insists that every child should be making exactly the same achievements at the same age, we come to the absurd conclusion that we can mandate equal educational outcomes for all. This is clearly different from the notion that Brown v. Board was intended to ensure equal educational opportunity for all. (This last has problems of its own, and you can read a perspective of what they are here).
And what is really quite interesting--at least to me--is that all of this insisting that everyone is the same is being done in the name of diversity. It makes me wonder if the people who wrap themselves most tightly in the mantle of the diversity movement are the same people who are most afraid of acknowledging that there are real differences among human beings. (For more of my thoughts about this, you can go here).
And so, I am thinking.
I am thinking that it is very interesting that those who cry out the loudest about their respect for diversity, actually want to treat every person as if he or she is exactly the same as every other person. As Thomas Jefferson said, " Remember, first that the greatest inequality is to treat unequal things equally..." (Thomas Jefferson to James Madison, December 20, 1787).
I am thinking that it is very interesting that the ideology of "no difference" in education arises just as the sciences of neurobiology and genetics are demonstrating the fundamental physical nature of differences among human beings in the brain as well as the body.
I am thinking that a denial of differences among people is a denial of individuality, which is defined by differences. And that if there is no individuality, then it could be argued that there is no need for individual rights. This kind of thinking could lead to a conception of group rights, a kind of fascism or collectivism that strikes at the very heart of the American ideal of individual rights inherent to each person.
I am thinking that it is also very interesting that this denial of individual differences comes at the same time that "Aspies" and other neurodiverse people are finding their own voices. They are declaring that they have their own cultures and their own appreciation of who they are--that their neuro-atypicality is part of their identity; that they don't want to be cured of it, that they like their differences. (See, for example, Daniel Tammet's book, Born on a Blue Day, or Susanne Antonetta's book, A Mind Apart: Travels in a Neurodiverse World. Or go to Aspies for Freedom, a website devoted to these ideas).
Somehow, all of this thinking is going to come together and gel with another train of thought, about what I call the narrowing of normal--which I have yet to write about--and I don't know yet what kinds of conclusions I am going to reach, and how they will affect my direction in my doctoral program.
Right now I am...just thinking.
Sunday, December 23, 2007
December Diversity, Not December Dilemma
Ah, the wonderful month of December!
Winter has begun in earnest, with snowstorms, days to snuggle in front of the fire, and time off to spend with family.
And the inevitable questions.
"What are your plans for Christmas?"
And every year, the synagogue puts on a program for the kids about the December Dilemma, which is the current catch-phrase for how to deal with Jewish identity when the whole world around you is going crazy with Christmas.
Years ago, after attending a few of these programs, MLC, now 22, asked us if she could opt out. She said that she didn't feel any sense of dilemma at all in December.
But overall, we decided to adopt a reasonable view of the season. After all, one simply cannot pretend that nothing is happening as most of the world celebrates a major holiday on December 25th. So, as a non-participating family, we decided on two policies about Christmas.
First, we decided to emphasize our Jewish identity all year 'round. For us, this meant living the Jewish calendar as well as living in the secular calendar. We celebrate all of the Jewish holidays with special meals, rituals and customs. Both of the kids have experienced the rich and varied round of the Jewish year, complete with observance of Shabbat every week. We decorate with colored lights--at Sukkot. We bring greenery into the house--at Shavuot. The kids grew up in a Jewish home, repleat with Jewish ritual and custom and traditions.
"MLC is growing up in a Jewish home and has the richness of numerous Jewish experiences. That is why she does not feel particularly deprived in December. Unfortunately, that is not true for the majority of the kids in our religious school." And he excused her from the program from that point on.
Our second strategy was to educate our kids about the Christmas holiday on an "as needed" basis. We answered questions and we indulged their natural curiosity without defensiveness.
Why be defensive when our kids weren't being deprived?
Sometimes, this meant giving the kids clear rules like, "I know we don't believe in Santa Claus, but it is very rude and unkind to tell other little children that he doesn't exist."
At other times, this meant allowing the children to bake Christmas cookies with their friends, or help decorate a Christmas tree. We also invited their friends to participate in some of our celebrations, such as lighting the Hannukah menorah, eating the Seder, or having havdalah with us. In this way, we emphasized the richness of the human experience, by teaching our kids to respect and appreciate that everyone has holy days, holidays, and ways of marking the passing of the seasons.
We have also enjoyed some of the unique aspects of the Christmas holiday as it is celebrated here in New Mexico. We go down to Old Town on the evening of December 24, to see the luminarias that line the sidewalks. We have taken the kids to Barelas to enjoy Las Posadas, the nine days of processions of Mary and Joseph that are part of the New Mexican and Spanish religious observance of Christmas. Through these activities, we want our children to understand that Christmas is not a secular buying frenzy, but a religious celebration for Christians. It is not our holiday, but it is somebody's holy day, and although it is not right for us to co-opt it for our own ends, neither should it offend us that people are celebrating it.
Our bottom line: It is important for us to observe our own holidays and maintain our Jewish identity. We do not celebrate Christmas just because "everybody is doing it." At the same time, if we are strong in our own identity then we can appreciate and enjoy the celebrations by others. It will not be offensive to us that Old Town is filled with luminarias, that wreaths decorate ABQ Uptown, and that Maria and Jose travel the streets of Barelas. The world would be so much poorer if there were no differences between us.
I think that our choices were good ones for strengthening our own children's Jewish identities and for teaching them to appreciate the color, the richness, and the fun of living in a world in which people have amazing differences.
We don't experience a December Dilemma. We experience the joy, light and color that come from many different traditions here in the southwest. And we are richer for enjoying the diverse ways people celebrate the turning of the seasons.
Wednesday, June 27, 2007
Respect for Diversity? Calling a Spade a Spade
This could turn out to be a two-part post. But first, the story. This is a true story and I think it says a lot about how comfortable the dominant culture is with differences and diversity in these United States. And that's not much.
The "Jews are Really Christians in Disguise" Story:
I used to be a member of a Jewish-Catholic Dialogue group. We would get together once a month to discuss an assigned reading and once a year, we ran an educational day to bring others in the community to discuss some issue or another. The more we met, the more I got the sense that the group did not want to discuss the hard stuff--like the role of Christian Europe in the Shoah, or even the differences between us. There seemed to be a sense in which the group wanted to get together and feel good about how diverse and accepting we all were. But differences? Well, they make people uncomfortable. Best not to talk about them.
This was confirmed for me when we got together to discuss two articles published in the Jesuit magazine, America. One article, by a self-labeled "conservative Catholic" archbishop, very matter-of-factly discussed some important theological differences between Catholicism and Judaism. And it was clear that the archbishop, speaking from his perspective, thought that Judaism had gotten it wrong about Jesus. This article was not suprising to me and some of the other Jews there. Nor was it offensive. After all, as a very small minority in the United States (somewhere around 2% if we are lucky), we are well aware that we think differently about the identity of Jesus than Christians do. The Archbishop did not express any contempt for Jews. He did point out the areas of disagreement. Strongly. And that had some of the Catholic members of the group falling all over themselves to show how very liberal and tolerant they are by refusing to acknowledge that we do, in fact, have very different beliefs about Jesus.
The second article, by a self-identified "liberal Catholic" was very different. Nothing was strongly worded at all. It appeared on the surface, that the writer was very "acccepting" and "tolerant." But I found his position to be extremely offensive. He argued that essentially Jews are really Christians who just don't know it yet, and therefore are worthy of "salvation." And the Catholic members of the group just couldn't get enough of it. They thought this neatly solved the whole problem of "salvation" for Jews.
For me, that was the problem.
In order to prove how "diverse" they were, the Catholic members who approved of this notion, and not all did, were essentially erasing our identity as Jews. And so I said something like this:
"Look, some of you have a problem with the Christian doctrine that salvation through belief that Jesus was the Messiah is the only way to relate to G-d. This is a Christian problem. It is about Christian doctrine. It has nothing to do with us as Jews. We do not agree with you about that doctrine. And we understand that it is part of the structure of your belief. And it's a free country. You have the right to believe that if you want to. As long as you do not exert force against those who do not agree with you, I am not offended by your belief. But when you take away my identity as a Jew because you are so uncomfortable with the fact that I disagree with you, then I am offended."
As you can imagine, in that group my statement set off quite a---well, discussion. I took some heat. And ultimately, the subject was dropped. Probably because it was too uncomfortable for some of the touchy-feely types who wanted to feel good about how liberal and accepting of diversity they think they are.
And that is the nub of the problem. Accepting diversity means that one accepts that others are not exactly like you. It means looking deep within and recognizing that your way of seeing the world is unique to you. It's a lonely realization. It means recognizing that yes, we are all human beings and members of the same species, with the same evolutionary heritage and genome. We are all very similar. The words Shakespeare puts into Shylock's mouth are:
If you tickle us, do we not laugh?
do we not die?..."
Monday, June 18, 2007
The Return of the Country Fair
The Country Fair, a carnival of homeschooling voices, is back again.
This means summer is really up and running!
I'm getting a cherry limade at the concession stand in my kitchen and heading on over for the 7th Country Fair: How We Celebrate Diversity.
You can go there, too and get diverse wisdom from a wide-open homeschooling community.
But, first, read on below...
As usual, I missed the deadline with "Neither Left nor Right..."
but I think it fits in with theme!
:)